The Neurofibromatosis (NF) Multidisciplinary Program at Riley Children’s Health offers unique treatments dedicated to providing excellent care for adult and pediatric patients with neurofibromatosis and schwannomatosis. As one of the few children’s hospitals in the nation with a multidisciplinary treatment program for NF, we can coordinate multiple services into one appointment for patients with either neurofibromatosis type 1 (NF1), NF2-related schwannomatosis or NF2-SWN.
Neurofibromatosis affects everyone differently. It causes tumors to grow on nerves throughout the body and brain, affecting nearly every body part. It can develop in unexpected ways throughout one’s life. That is why we collaborate with different specialties throughout Riley Children’s Health and IU Health, including neuro-oncology, neurology, neurosurgery, genetics, ophthalmology, otolaryngology, orthopedic and pediatric surgery, pediatric psychology and neuropsychology.
Conditions & Services
Conditions Treated
Our pediatric specialists provide patient- and family-centered care for most related conditions. The links below provide more specific information about some, but not all, of the conditions that we treat.
Services Offered
We offer a number of different Neurofibromatosis Program services. Below are some, but not all, of the services that we provide. If you have a question about a specific service that is not listed here, please contact our program.
Doctors and Locations
Doctors
Locations
Locations
In addition to our primary hospital location at the Academic Health Center in Indianapolis, IN, we have convenient locations to better serve our communities throughout the state.
Sort through 4 facilities offering Neurofibromatosis Program care by entering your city or zip below.
Patient & Family Resources
Patient & Family Resources
Below is a list of services provided by Riley Children's to help support your child and family through their cancer care with us. These are just a few of the support services provided.
Learn more about our Patient and Family Support Services.
Resources
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With our school program, your child does not have to miss out on important education while receiving treatment.
Related Programs & Departments
Related Programs & Departments
We provide multispecialty care for a number of conditions. Below are links to our related programs & departments.
- Pediatric Audiology & Speech Pathology
- Pediatric Cardiology
- Children's Clinical Research Center
- Herman B Wells Center for Pediatric Research
- Medical & Molecular Genetics
- Pediatric Neurology
- Pediatric Neurosurgery
- Pediatric Ophthalmology
- Pathology
- Pediatric Dermatology
- Pediatric Endocrinology
- Pediatric General Surgery
- Pediatric Hematology & Oncology
- Pediatric Kidney Health
- Pediatric Plastic & Reconstructive Surgery
- Pediatric Radiology
Health Professionals
For Health Professionals
Refer A Patient
To refer a patient to the Neurofibromatosis Program, please call 317.944.2143.
Refer A PatientResearch
Riley Children's Center for Cancer & Blood Diseases is affiliated with the IU Health Melvin and Bren Simon Cancer Center, the state’s only National Cancer Institute-designated cancer center for clinical care.
Riley Children’s Health is a member of the Children’s Oncology Group Phase I Consortium. Patients can access the latest clinical trials and leading-edge medications, all while under the care of highly skilled physicians and staff.
Latest clinical trials provide a pathway to novel treatment options
- Exclusive trials available through the NF Clinical Trial Consortium, the NF Clinic Network, the Pacific Pediatric Neuro-Oncology Consortium and the Children’s Oncology Group
Riley Children’s is a high-enrolling site for clinical trials targeting plexiform neurofibromas and malignant peripheral nerve sheath tumors. We also enroll patients in clinical studies to treat vestibular schwannomas.
Education
The Neurofibromatosis Program at Riley Children’s helps train the next generation of pediatric hematologists and oncologists. Pediatric oncology/hematology fellows at the IU School of Medicine learn about the latest advancements in personalized cancer treatment by spending part of their training with our team.