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Coronavirus (COVID-19) Updates: Visitor Restrictions & More

Safety Measures at Riley Children’s Health

We are taking thoughtful steps to ensure our spaces remain safe for patients, parents and caregivers. View safety measures, mask policy and visiting guidelines.

Information on COVID-19

Learn more about COVID-19, information about previously scheduled appointments and what you can do to help protect your child and family. View COVID-19 information.


Free Virtual Coronavirus Screenings

IU Health has launched a virtual clinic to offer individuals in Indiana regardless of age free coronavirus (COVID-19) screenings. View screening details.

Actualizaciones del Coronavirus (COVID-19)

Información sobre el COVID-19

Obtenga más información acerca del COVID-19, incluyendo las preguntas más frecuentes y lo que puede hacer para ayudar a protegerse y proteger a su familia. Ver información del COVID-19.


Restricciones para visitantes

Las instalaciones de salud de IU Health han implementado restricciones a los visitantes para ayudar a minimizar la propagación del COVID-19, la gripe y otros virus respiratorios. Ver restricciones para visitantes.


Información sobre citas ambulatorias previamente programadas

Para asegurar la salud y la seguridad de todos nuestros pacientes y empleados durante la pandemia del coronavirus (COVID-19), estamos haciendo ajustes en algunas de nuestras citas ambulatorias. Ver actualizaciones de citas ambulatorias.


Exámenes de coronavirus virtuales gratuitos

IU Health ha lanzado una clínica virtual para ofrecer a las personas en Indiana, independientemente de la edad, evaluaciones virtuales para la detección del coronavirus (COVID-19). Ver detalles de la evaluación.

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Adults with Congenital Heart Disease

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An estimated one million adults in the United States are living with congenital heart disease, according to the Centers for Disease Control and Prevention. While their life expectancy and quality of life keep improving due to better treatments, many adults lack appropriate follow-up care and lifestyle counseling that can help them stay healthy at various stages in life.

Why Riley at IU Health?

Why Riley at IU Health?

The Adults with Congenital Heart Disease Program at Riley at IU Health offers comprehensive care for people who need lifelong monitoring for heart conditions. Our team of experts can manage the unique healthcare needs that accompany congenital heart disease.

Our experienced team includes adult and pediatric cardiologists and congenital surgeons along with additional healthcare providers who are specially trained to diagnose, treat and manage even the most complex congenital heart defects.

Why See an Adult Congenital Heart Specialist?

When follow-up care is ignored or neglected, adults born with congenital heart defects face a range of health risks, especially if they have unrelated healthcare delivered by providers who may not fully understand or know about a patient’s heart condition. Even the most ordinary procedure can be risky if it is not carefully coordinated.

Although many congenital heart defects are successfully repaired in childhood, people with heart conditions need to be monitored all through life. Our specialists provide lifelong care, customized for your condition. We can educate you about symptoms and guide you through many lifestyle decisions—from family planning to exercise. Staying current with a qualified specialist ensures that your total health is managed in concert with your heart condition and other changes that can affect your health.

Multidisciplinary Care for Adults With Congenital Heart Disease

Riley at IU Health, in close collaboration with the Indiana University Health Heart & Vascular team, serves all adults with congenital heart defects. Our multidisciplinary team provides:

  • Diagnosis and treatment for symptoms of congenital heart disease that happen for the first time well past childhood
  • Access to clinical trials offering the newest therapies and treatments
  • Coordinated care for mothers and unborn babies affected by congenital heart disease, delivered by maternal-fetal medicine specialists trained to manage and support high-risk pregnancies
  • Pre-conception, genetic and birth control counseling, through our Reproductive Health, Pregnancy and Congenital Heart Disease Program and Cardiovascular Genetics Program
  • Comprehensive follow-up care for heart complications that may accompany congenital heart defects, such as arrhythmias, heart failure, infection and stroke
  • An easy transition for young adults who are ready for an adult-focused program
  • Reproductive healthcare for adolescents who are becoming sexually mature
  • Sophisticated diagnostic and imaging technology, supported by skilled professionals—both of which are necessary to plan unique heart procedures
  • Interventional cardiologists and cardiothoracic surgeons who work together to deliver customized care for complex anatomies
  • Corrective Surgeries such as Fontan procedure revision, Atrial Septal Defect (ASD) closure, pulmonary valve replacement and repairs, aortic valve replacement and repairs, coarctation repairs and repairs for any other heart defects or valve condition
  • Catheter intervention to include Atrial Septal Defect (ASD), Ventricular Septal Defects and Patent Ductus Arteriosus (PDA) closure, balloon valvuloplasty and stenting to relieve narrowing and valve replacement
  • Electrophysiology study, catheter ablation of arrhythmia and device placement such as pacemaker and defibrillator.

Close collaboration between highly skilled pediatric and adult cardiologists at Riley at IU Health and IU Health gives adults with congenital heart defects access to a wide range of advanced treatments and procedures. These options are only available through a comprehensive program that combines specialized experts and resources together in one place. Our multidisciplinary team meets on a weekly basis to discuss each case and plan optimal care for each patient.

The Riley Heart Center is one of only 30+ locations in the United States certified to implant total artificial hearts and perform heart transplants. As a pediatric healthcare system that is steeped in research and innovation, Riley at IU Health provides treatments that significantly improve quality of life for adults with the most complex heart defects and heart conditions that were once untreatable.

As a world-class resource for people of all ages who have congenital heart disease, we are committed to helping patients manage their conditions and plan for optimal health. Visit the Riley Heart Center to learn more about the education, support and multidisciplinary care available at Riley at IU Health.

Conditions & Services

Conditions Treated

Our pediatric specialists provide patient- and family-centered care for most related conditions. The links below provide more specific information about some, but not all, of the conditions that we treat.

  • Atrial Septal Defects
  • Atrioventricular Canal Defect
  • Cardiomyopathy
  • Congenital Heart Disease
  • D-Transposition of the Great Vessels
  • Heterotaxy Syndrome
  • Hypoplastic Left Heart Syndrome (HLHS)
  • Supraventricular Tachycardia
  • Tetralogy of Fallot
  • Truncus Arteriosus
  • Ventricular Septal Defects

Services Offered

We offer a number of different Adults with Congenital Heart Disease services. Below are some, but not all, of the services that we provide. If you have a question about a specific service that is not listed here, please contact our program.

  • Echocardiogram

Doctors and Locations

Doctors

of | results

    Locations

    Locations

    In addition to our primary hospital location at the Academic Health Center in Indianapolis, IN, we have convenient locations to better serve our communities throughout the state.

    Sort through 14 facilities offering Adults with Congenital Heart Disease care by entering your city or zip below.

    See all facilities

    Program Forms & Resources

    Program Forms & Resources

    These resources can help you learn more about how to manage congenital heart disease.

    Resources

    • Child to Adult Transition

      Riley at IU Health has created this resource to help ease our patients in transitioning from pediatric to adult care.

    • CardioSmart

      This website, published by the American College of Cardiology, shares guidelines on care for adults with congenital heart disease. It also offers helpful information about conditions and treatments.

    • National Heart, Lung and Blood Institute

      This research institute is part of the National Institutes of Health and publishes extensive information about congenital heart disease.

    Related Programs & Departments

    Related Programs & Departments

    We provide multispecialty care for a number of conditions. Below are links to our related programs & departments.

    • Adolescent Medicine
    • Pediatric Cardiology
    • Pediatric Cardiothoracic Surgery
    • Cardiovascular Genetics Program
    • Cardiovascular Intensive Care Unit
    • Maternal-Fetal Medicine (MFM)
    • Neonatology (NICU)
    • Reproductive Health Program for Adolescents & Young Adults with Congenital Heart Disease
    • Riley Heart Center

    Related Stories

    Related Stories

    Blog Aurs Web

    Two heart surgeries, four decades apart, bring together surgeon and patient

    07/11/19 Patient Stories

    Dr. John Brown first operated on Richard Aurs when Aurs was a little boy. Forty years later, they met again in an operating room.

    Continue reading
    Blog Andis Web

    For this Riley heart patient, the bed might have been a smidge too short

    07/03/19 Patient Stories

    Ryan Andis, 33, spent a week at Riley last month. His room was next to River Harbin, a 4-year-old heart transplant patient who taught him something about life.

    Continue reading

    View the Riley Connections Blog

    Health Professionals

    For Health Professionals

    Specialists at the Riley Heart Center work with primary care physicians and cardiologists to provide advanced care for adults with congenital heart disease. Referring physicians may contact us at 317.944.8906 and 317.962.9700, or by fax at 317.968.1275 and 317.962.9704.

    Refer A Patient

    Refer A Patient

    We welcome new patients affected by congenital heart disease through referrals from primary care physicians. Contact us at 317.944.8906 or 317.962.9700.

    Refer A Patient

    Research

    Riley Heart Center specialists are active researchers who improve care for congenital heart disease and acquired heart disease through innovation. At any given time, they are engaged in numerous clinical trials and research to find better treatment options. A team of physicians, researchers and coordinators at the Riley Heart Center collect outcome data for research purposes by pediatric cardiovascular specialists working with multiple research partners, including the Indiana University School of Medicine. They also support continuous process improvement at the Riley Heart Center. Bench researchers at the Herman B. Wells Center for Pediatric Research collaborate with our physicians on studies related to heart failure in children.

    Education

    The Riley Heart Center offers formal fellowship training for physicians who want to advance their experience in pediatric cardiology, critical care and cardiac surgery. Part of the cardiology fellowship program at Indiana University School of Medicine includes an optional rotation within the Adults With Congenital Heart Disease Program at Riley at IU Health. Visit the Indiana University School of Medicine website for details about our fellowship program.

    Education Resources:
    • Fellowship
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