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An estimated one million adults in the United States are living with congenital heart disease, according to the Centers for Disease Control and Prevention. While their life expectancy and quality of life keep improving due to better treatments, many adults lack appropriate follow-up care and lifestyle counseling that can help them stay healthy at various stages in life.
The Adults With Congenital Heart Disease Program at Riley at IU Health offers comprehensive care for people who need lifelong monitoring for heart conditions. Our multidisciplinary team can manage the unique healthcare needs that accompany congenital heart disease.
Our experienced team includes adult and pediatric cardiologists and other healthcare providers who are specially trained to diagnose, treat and manage even the most complex congenital heart defects.
When follow-up care is ignored or neglected, adults born with congenital heart defects face a range of health risks, especially if they have unrelated healthcare delivered by providers who may not fully understand or know about a patient’s heart condition. Even the most ordinary procedure can be risky if it is not carefully coordinated.
Although many congenital heart defects are successfully repaired in childhood, people with heart conditions need to be monitored all through life. Our specialists provide lifelong care, customized for your condition. We can educate you about symptoms and guide you through many lifestyle decisions—from family planning to exercise. Staying current with a qualified specialist ensures that your total health is managed in concert with your heart condition and other changes that can affect your health.
Riley at IU Health, in close collaboration with Indiana University Health Methodist Hospital, serves many kinds of adults with congenital heart defects—a population that represents up to two-thirds of all such patients. Our multidisciplinary team provides:
Close collaboration between highly skilled pediatric and adult cardiologists at Riley at IU Health and IU Health Methodist Hospital gives adults with congenital heart defects access to a wide range of advanced treatments and procedures. These options are only available through a comprehensive program that combines specialized experts and resources together in one place. Our multidisciplinary team meets on a weekly basis to discuss each case and plan optimal care for each patient.
The Riley Heart Center is one of only 30+ locations in the United States certified to implant total artificial hearts and perform heart transplants. As a pediatric healthcare system that is steeped in research and innovation, Riley at IU Health provides treatments that significantly improve quality of life for adults with the most complex heart defects and heart conditions that were once untreatable.
As a world-class resource for people of all ages who have congenital heart disease, we are committed to helping patients manage their conditions and plan for optimal health. Visit the Riley Heart Center to learn more about the education, support and multidisciplinary care available at Riley at IU Health.
Riley at IU Health has a leading pediatric research hospital with a reputation for advanced care of children and adults with congenital heart disease. The Riley Heart Center is one of the busiest and most skilled heart programs in the United States, nationally ranked as one of the best locations for innovative heart treatments and positive results.
Our pediatric specialists provide patient- and family-centered care for most related conditions. The links below provide more specific information about some, but not all, of the conditions that we treat.
These resources can help you learn more about how to manage congenital heart disease.
We provide multispecialty care for a number of conditions. Below are links to our related programs & departments.
Specialists at the Riley Heart Center work with primary care physicians and cardiologists to provide advanced care for adults with congenital heart disease. Referring physicians may contact us at 317.274.8906 and 317.962.9700, or by fax at 317.274.4022 and 317.962.9704.
Riley Heart Center specialists are active researchers who improve care for congenital heart disease and acquired heart disease through innovation. At any given time, they are engaged in numerous clinical trials and research to find better treatment options. A team of physicians, researchers and coordinators at the Riley Heart Center collect outcome data for research purposes by pediatric cardiovascular specialists working with multiple research partners, including the Indiana University School of Medicine. They also support continuous process improvement at the Riley Heart Center. Bench researchers at the Herman B. Wells Center for Pediatric Research collaborate with our physicians on studies related to heart failure in children.
The Riley Heart Center offers formal fellowship training for physicians who want to advance their experience in pediatric cardiology, critical care and cardiac surgery. Part of the cardiology fellowship program at Indiana University School of Medicine includes an optional rotation within the Adults With Congenital Heart Disease Program at Riley at IU Health. Visit the Indiana University School of Medicine website for details about our fellowship program.