The transition for teens from childhood into adult life crosses a number of spheres. A teen will prepare to move from school to work, from living within their family’s home to independent living, and from dependence on their parents to independence as their own decision-maker. It’s an exciting time of discovery and growth.
Healthcare is another important sphere of adult responsibility. As teens grow, there are milestones to face as they take charge of their own healthcare. Many questions arise: How do you find for yourself a new adult primary care physician? Why do you need one? What do you do about health insurance? Do you know how to schedule an appointment? Can you fill a prescription? How should you take care of your own health? The good news is the transition to adult healthcare doesn’t have to be scary. A teen can build confidence by working on these key questions step by step.
There are several important parts to the pediatric to adult healthcare transition for all teens and young adults:
The teen to adult transition may look somewhat different for each individual. Most teens do not have chronic health conditions. Therefore they need to address three main issues: how to stay healthy, how to work well within to the healthcare system and how to make decisions about their own health.
Teens who have special healthcare needs should work on a few additional planning steps. For example, youth with conditions like diabetes, cystic fibrosis or sickle cell anemia should learn all they can about how their condition affects their health and how to take charge in getting their unique needs met. Some youth may also need extra help in problem-solving and reasoning skills because of their limits due to intellectual, physical or emotional disabilities. These youth should be encouraged to reach high as their own self-advocate while also getting decision-making support from advocates or guardians.
The right way to make the pediatric to adult transition is to take an active role. Teens need to practice stepping up in caring and speaking for themselves. Parents need to find ways to step back and create the space that can allow their teen to step up, while also teaching and role modeling the health skills that every adult needs.
One thing that many people notice is the model of healthcare for children is designed differently than the model for adults. A children’s hospital will create a friendly, playful and safe environment. In the adult healthcare setting, young adults will be treated like the adults they want to be with their privacy and safety protected. These differences are appropriate to the different needs of patients at their different ages. Family and others within each person’s circle of support are important resources during the early periods of preparation for the transfer to adult care and the later period of adjustment into the adult system.
At Riley at IU Health, your health care team can help with the transition process. A teen should ask their doctor: How are my health needs changing as my body grows up? How should I take on more responsibilities in caring for myself? When do I need to move to an adult provider? Are there special aspects about my own health that I should focus us now? There are programs and resources available at Riley at IU Health, including the statewide transition support program called the Center for Young Adults With Conditions of Childhood (CYACC) and the Riley Teen Leadership Council.
The destination in this transition is an exciting one: a young adult growing into an activated and capable adult, engaging in the appropriate healthcare service to keep them healthy and strong.
There are several ways to get help in the transition process—at Riley at IU Health, within the state of Indiana and with online educational resources. The Edward A. Block Family Library at Riley offers several resources on these topics. Social workers at Riley also are available to assist in navigating needs and possible resources.
The Indiana Transition Workbook gives ways to explore, learn about and prepare for adult life. Use the workbook as a guide. Pick the parts of the workbook that fit your needs.
This workbook was created by the Center for Youth and Adults with Conditions of Childhood.
These state-based organizations provide resources on independent living:
Several Indiana parent-to-parent organizations for families with children with special needs provide educational and support resources, including around the time of transition:
Visit this trusted national website for more information:
GotTransition.org. The Center for Health Care Transition Improvement provides a national focus on the transition of youth to adult healthcare. They aim to improve transition from pediatric to adult healthcare with information for health professionals and youth and families.