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Coronavirus (COVID-19) Updates: Visitor Guidelines & More

Safety Measures at Riley Children’s Health

We are taking thoughtful steps to ensure our spaces remain safe for patients, parents and caregivers. View safety measures, mask policy and visiting guidelines.

Information on COVID-19

Learn more about COVID-19, information about previously scheduled appointments and what you can do to help protect your child and family. View COVID-19 information.


Free Virtual Coronavirus Screenings

IU Health has launched a virtual clinic to offer individuals in Indiana regardless of age free coronavirus (COVID-19) screenings. View screening details.

Actualizaciones del Coronavirus (COVID-19)

Información sobre el COVID-19

Obtenga más información acerca del COVID-19, incluyendo las preguntas más frecuentes y lo que puede hacer para ayudar a protegerse y proteger a su familia. Ver información del COVID-19.


Restricciones para visitantes

Las instalaciones de salud de IU Health han implementado restricciones a los visitantes para ayudar a minimizar la propagación del COVID-19, la gripe y otros virus respiratorios. Ver restricciones para visitantes.


Información sobre citas ambulatorias previamente programadas

Para asegurar la salud y la seguridad de todos nuestros pacientes y empleados durante la pandemia del coronavirus (COVID-19), estamos haciendo ajustes en algunas de nuestras citas ambulatorias. Ver actualizaciones de citas ambulatorias.


Exámenes de coronavirus virtuales gratuitos

IU Health ha lanzado una clínica virtual para ofrecer a las personas en Indiana, independientemente de la edad, evaluaciones virtuales para la detección del coronavirus (COVID-19). Ver detalles de la evaluación.

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Riley Children's Health

Rare Lung Disease Program

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Children of all ages receive advanced, family-centered care from pediatric pulmonologists in the Rare Lung Disease Program at Riley at IU Health. We partner with your child’s primary care doctor to provide comprehensive care for rare, complex lung conditions and abnormalities, immune system disorders and genetic lung conditions such as primary ciliary dyskinesia.

Depending on your child’s condition, care team members may include doctors from specialties such as pulmonology, ear, nose and throat, gastroenterology and radiology as well as dedicated specially trained nurses, social workers and pharmacists.

At your first appointment, our nurse coordinator will speak with you about concerns that you have with your child’s breathing. The nurse will ask about your child’s symptoms and any family history of breathing problems. You will then meet with one of our pulmonologists, who will review your child’s history and symptoms. The pulmonologist will also examine your child and may order diagnostic procedures. These may include bronchoscopy, pulmonary function testing and imaging tests such as X-ray and computed tomography (CT).

Nasal nitric oxide collection, which measures exhaled nitric oxide, and ciliary biopsy collection, which examines cilia specimens from the nasal passages, is also available. Both of these tests are used to diagnose primary ciliary dyskinesia.

After reviewing your child’s medical history and physical exam and diagnostic test results, the pulmonologist and care team will recommend a treatment plan that meets your child’s specific needs, which includes daily management and follow-up care with the pulmonologist. Expert care for your child is assured with access to the resources of Riley at IU Health.

Conditions & Services

Conditions Treated

Our pediatric specialists provide patient- and family-centered care for most related conditions. The links below provide more specific information about some, but not all, of the conditions that we treat.

  • Primary Ciliary Dyskinesia

Services Offered

We offer a number of different Rare Lung Disease Program services. Below are some, but not all, of the services that we provide. If you have a question about a specific service that is not listed here, please contact our program.

  • Computed Tomography (CT Scan)
  • Pulmonary Function Testing

Doctors and Locations

Doctors

Our pulmonary doctors provide expert, family-centered care. Learn about the skills and specialties of our pediatric pulmonologists.

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    Locations

    Locations

    In addition to our primary hospital location at the Academic Health Center in Indianapolis, IN, we have convenient locations to better serve our communities throughout the state.

    Riley Outpatient Center at IU Health

    Pediatric Pulmonology & Respiratory Care
    575 Riley Hospital Dr
    Indianapolis, IN 46202

    317.274.7208

    Get Directions

    View location information

    Program Forms & Resources

    Program Forms & Resources

    The Rare Lung Disease Program at Riley at IU Health provides the following forms for parents, healthcare providers and personnel. We have also curated relevant resources from other websites and provided links with brief descriptions of the information that is available.

    Resources

    • PCD Foundation

      Patients and parents established the PCD Foundation to raise awareness and promote research for better treatments and a cure for primary ciliary dyskinesia.

    Related Departments

    Related Departments

    We provide multispecialty care for a number of conditions. Below are links to our related departments.

    • Pediatric Pulmonology & Respiratory Care

    Health Professionals

    For Health Professionals

    Pediatric pulmonologists at Riley at IU Health partner with you to provide advanced diagnosis and treatment for your patients. You can refer a patient and learn about our pulmonary research and education programs.

    Refer A Patient

    Refer A Patient

    Riley at IU Health works with referring physicians in Indiana and beyond.

    Refer A Patient

    Research

    Visit the Section of Pediatric Pulmonology, Allergy and Sleep Medicine at Indiana University School of Medicine for information about the latest research in the field of pulmonology.

    Education

    As faculty members of the Indiana University School of Medicine, we help train the next generation of pediatric pulmonologists. Our Pediatric Pulmonology Fellowship Program provides post-residency training in an atmosphere of mentorship and collaboration.

    Education Resources:
    • Medical Students
    • Residents
    • Fellowship
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