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Coronavirus (COVID-19) Updates: Visitor Restrictions & More

Safety Measures at Riley Children’s Health

We are taking thoughtful steps to ensure our spaces remain safe for patients, parents and caregivers. View safety measures, mask policy and visiting guidelines.

Information on COVID-19

Learn more about COVID-19, information about previously scheduled appointments and what you can do to help protect your child and family. View COVID-19 information.


Free Virtual Coronavirus Screenings

IU Health has launched a virtual clinic to offer individuals in Indiana regardless of age free coronavirus (COVID-19) screenings. View screening details.

Actualizaciones del Coronavirus (COVID-19)

Información sobre el COVID-19

Obtenga más información acerca del COVID-19, incluyendo las preguntas más frecuentes y lo que puede hacer para ayudar a protegerse y proteger a su familia. Ver información del COVID-19.


Restricciones para visitantes

Las instalaciones de salud de IU Health han implementado restricciones a los visitantes para ayudar a minimizar la propagación del COVID-19, la gripe y otros virus respiratorios. Ver restricciones para visitantes.


Información sobre citas ambulatorias previamente programadas

Para asegurar la salud y la seguridad de todos nuestros pacientes y empleados durante la pandemia del coronavirus (COVID-19), estamos haciendo ajustes en algunas de nuestras citas ambulatorias. Ver actualizaciones de citas ambulatorias.


Exámenes de coronavirus virtuales gratuitos

IU Health ha lanzado una clínica virtual para ofrecer a las personas en Indiana, independientemente de la edad, evaluaciones virtuales para la detección del coronavirus (COVID-19). Ver detalles de la evaluación.

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Riley Children's Health

Down Syndrome Program

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Having a child with special needs can present unique challenges. From birth to adolescence, the Down Syndrome Program at Riley at IU Health provides specialized care for children with Down syndrome.

We provide advice and support for families while ensuring every child receives the best care available to grow and develop to his or her full potential.

Our objectives are to:

  • Give children with Down syndrome the personalized healthcare they require
  • Provide current information on health-related services for children with Down syndrome
  • Link families with community services
  • Educate the community about the strengths and abilities of individuals with Down syndrome

There are differences in the mental abilities, behavior and physical development of people with Down syndrome. Informed and supportive families, therapists and school and community personnel help children with Down syndrome reach their highest developmental capability.

Our Interdisciplinary Approach to Down Syndrome Care

When your child is seen in our program, he or she will get a coordinated, individualized evaluation. Your child will be seen by a board certified pediatrician who specializes in children with special developmental needs. A nurse practitioner, dietitian, speech therapist, occupational and physical therapists and a social worker are also part of the team and may be consulted if needed following discussion with your doctor. 

Our Neonatology Department collaborates with our Developmental Pediatrics Department to treat newborn babies who have Down syndrome and educate their families. Once babies with Down syndrome have been evaluated in the neonatal intensive care unit (NICU) and any immediate necessary treatments have been provided, the Down Syndrome Program will work with you to coordinate ongoing care.

Older children may also be referred to the Down Syndrome Program. As your child grows, our program grows, too. As part of the Developmental Pediatrics Department, our team is able to adjust the care we provide to your child’s changing needs. Close communication throughout the hospital departments means that specialists are easily accessible in the event that more care is needed.

Our developmental pediatrics doctors help families transition from child care to adult care when the time comes. Conversations about this transition begin early so that the process is as smooth as possible. The goal is to enable patients to move toward independence and to ensure that they have the resources for optimal decision-making. This transition typically happens sometime between the ages of 18 and 25. The Center for Youth and Adults With Conditions of Childhood (CYACC) aids in this transition.

Conditions & Services

Conditions Treated

Our pediatric specialists provide patient- and family-centered care for most related conditions. The links below provide more specific information about some, but not all, of the conditions that we treat.

  • Down Syndrome

Doctors and Locations

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    Locations

    Locations

    Program Forms & Resources

    Program Forms & Resources

    The Down Syndrome Program at Riley at IU Health provides the following forms for parents, healthcare providers and personnel. We have also curated relevant resources from other websites and provided links with brief descriptions of the information that is available.

    Forms

    • Consultation Request Form (Riley at IU Health) 228.7 KB

      Referring providers should fill out this form and fax it to our dedicated referral fax line at 317.944.9760.

    Related Programs & Departments

    Related Programs & Departments

    We provide multispecialty care for a number of conditions. Below are links to our related programs & departments.

    • Center for Youth & Adults With Conditions of Childhood
    • Developmental Pediatrics
    • Neonatology (NICU)

    Health Professionals

    For Health Professionals

    We recommend that providers refer newly diagnosed newborns to the Down Syndrome Program within four to six weeks after discharge from the NICU.

    Education

    Medical students and residents, as well as other learners, have the opportunity to observe in the Down Syndrome Program by contacting Tara O'Sullivan at 317.948.1571.

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