Sclerosing cholangitis is a condition where inflammation of the bile ducts inside and outside the liver eventually leads to scarring and narrowing of the ducts. When this happens the ducts are unable to carry bile (liquid that breaks down fat) away from the liver and to the small intestine. Bile builds up in the liver, causing cirrhosis or liver failure.
The cause of sclerosing cholangitis is unknown, though the condition is associated with Crohn's disease and ulcerative colitis. Genetic factors may also be responsible. Sclerosing cholangitis is rare in children and occurs more often in males than females.
Symptoms of sclerosing cholangitis include:
If your child experiences symptoms of sclerosing cholangitis, a pediatric gastroenterologist can perform the following exams and tests to help make a diagnosis:
Treatments for sclerosing cholangitis include:
Visit the websites below to find support groups and services and learn more about sclerosing cholangitis.
Riley at IU Health offers a broad range of supportive services to make life better for families who choose us for their children's care.
This website offers information about sclerosing cholangitis, including its symptoms, causes and treatments.
This National Institutes of Health website provides information for patients and families living with sclerosing cholangitis.
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