The Neonatal Intensive Care Units (NICUs) at Riley Hospital for Children and IU Health Methodist Hospital are putting visitor restrictions in place starting Monday, Nov. 18th. Only visits by parents plus four designated adults identified by the parents will be allowed on the NICU floor.
Siblings and children under 18 will not be permitted. These restrictions minimize risk of infection to patients already at risk and will be in place through spring 2020.
Prader-Willi syndrome is a rare and complex genetic condition. Babies born with this condition will usually have poor muscle tone and a weak cry.
Children with Prader-Willi syndrome may take a long time to feed and gain weight slowly. Typically by the time a child with Prader-Willi syndrome reaches 2 or 3 years of age, he or she will have a dramatic increase in appetite and begin to overeat, leading to rapid weight gain and eventually obesity.
The symptoms of Prader-Willi syndrome include:
The doctor may detect Prader-Willi syndrome if your child is born with poor muscle tone and feeds poorly. If your child's doctor suspects Prader-Willi syndrome, he or she will perform a blood test to confirm the diagnosis. Further testing may be required to determine the exact cause of the condition.
There is no cure for Prader-Willi syndrome. However, your child’s doctor can help you access services and therapies that may help the symptoms caused by the condition.
Treatment options may include:
Visit the following websites to find more information about Prader-Willi syndrome.
Riley at IU Health offers a broad range of supportive services to make life better for families who choose us for their children's care.
This website from the U.S. National Library of Medicine provides easy-to-read information about Prader-Willi syndrome.
The Prader-Willi Syndrome Association offers educational information and support for individuals and families living with Prader-Willi syndrome.
In addition to our primary hospital location at the Academic Health Center in Indianapolis, IN, we have convenient locations to better serve our communities throughout the state.
Medical & Molecular Genetics
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Indianapolis, IN 46201
Evan Brenneman has a rare disorder called Prader-Willi syndrome. One of its cruelest symptoms is chronic hunger.Continue reading