Cystic fibrosis (CF) is a genetic condition that affects a child’s lungs and digestive tract. This can lead to problems with nutrition and growth. The Cystic Fibrosis Program at Riley at IU Health is highly experienced in working with children and families living with cystic fibrosis.
The bodies of children with CF produce a thick, sticky mucus that clogs the airways in the lungs and leads to serious lung infections. This mucus also affects the esophagus, stomach and intestines which can cause poor nutrition and growth.
Our medical team uses a multidisciplinary approach. Doctors and other medical professionals who work in the Cystic Fibrosis Program are specialists in gastroenterology, pulmonology, nursing, nutrition, respiratory therapy, social work, pharmacy and genetic counseling.
The Cystic Fibrosis Program at Riley at IU Health works with children and families from Indiana as well as other states. The Cystic Fibrosis Center at Riley at IU Health is the only pediatric center accredited by the Cystic Fibrosis Foundation in the state of Indiana and one of 115 care centers in the United States. Treatment of CF continues to advance as the Cystic Fibrosis Program at Riley at IU Health and other centers partner with the Cystic Fibrosis Foundation to improve care and the quality of life for patients.
Many children with CF live well into adulthood—today people with CF are expected to survive to an average age of 38. At Riley at IU Health, we work with children and their families to move the child into an adult program. This planned preparation includes:
At Riley at IU Health, the health results data for our Cystic Fibrosis Program is reported to the public. Data for all CF centers can be found at the Cystic Fibrosis Foundation website. The goal of this effort is to accelerate the quality of care and improve the relationship between patients, families and the care center.
Sign up today for our quarterly e-newsletter to get up-to-date information for your child or loved one with cystic fibrosis. To read archived articles from past newsletters, visit the Riley Children's Health Connections Blog.
We treat most Cystic Fibrosis conditions. Below is more information about some, but not all, of the conditions that we treat.
We offer a number of different Cystic Fibrosis services. Below are some, but not all, of the services that we provide. If you have a question about a specific service that is not listed here, please contact our program.
Services and care provided through the Cystic Fibrosis Program are coordinated through our specialized pediatric gastroenterology and pulmonology doctors.
In addition to our primary hospital location at the Academic Health Center in Indianapolis, IN, we have convenient locations to better serve our communities throughout the state.
Pediatric Pulmonology & Respiratory Care
575 Riley Hospital Dr
Indianapolis, IN 46202
Pulmonology & Respiratory Care
4133 Gateway Blvd
Newburgh, IN 47630
The Cystic Fibrosis Program at Riley at IU Health provides the following forms for parents, healthcare providers and personnel. We have also curated relevant resources from other websites and provided links with brief descriptions of the information that is available.
What To Do When Your Child Is Sick (Riley at IU Health)
This handout provides helpful information for parents.
This foundation researches and develops new medicines to fight CF, improve the quality of life for those with CF and ultimately find a cure. Call the Indiana Chapter at 317.202.9210.
The Center for Youth & Adults With Conditions of Childhood
The CYACC provides transition consultation, education and care coordination across all diagnoses. The team works with children and their families to create a portable medical summary and transition plan.
We provide multispecialty care for a number of conditions. Below are links to our related departments.
The specialists at the Cystic Fibrosis Program at Riley at IU Health work closely with referring physicians from across Indiana. Program physicians are actively involved in research to find better treatments they can use to care for patients. Our team also plays a role in training medical residents and fellows.
Riley at IU Health works with referring physicians in Indiana and beyond.
Refer A PatientThe physicians at the Cystic Fibrosis Program at Riley at IU Health serve as faculty who help train medical residents and fellows.
