The Pediatric Hereditary Polyposis Program at Riley Children’s Health provides expert care for children and adolescents with hereditary gastrointestinal polyposis syndromes and multiple gastrointestinal polyps. We offer comprehensive evaluation, genetic counseling, psychological support, endoscopic management, and long-term surveillance to help families navigate these complex conditions.
As Indiana’s only dedicated Pediatric Hereditary Polyposis Program, our team of gastroenterologists provides specialized care for children and adolescents with hereditary polyposis syndromes and multiple gastrointestinal polyps. We collaborate closely with genetic counselors, psychologists, surgeons, oncologists, and other specialists when needed to ensure comprehensive evaluation, management, and long-term surveillance. Our goal is to detect and manage polyps early, reduce cancer risk, and support the physical and emotional well-being of children and their families.
What to Expect
What to Expect
Your child’s care begins with a detailed evaluation, which may include genetic testing, endoscopic procedures, and imaging studies to assess the number, size, and location of gastrointestinal polyps. Based on these findings, we develop a personalized care plan that may include:
- Routine surveillance with endoscopy and imaging
- Endoscopic removal of polyps (polypectomy or endoscopic mucosal resection)
- Coordination with surgical specialists if surgery is needed
- Genetic counseling for families regarding hereditary cancer syndromes
- Psychosocial support to help children and families cope with diagnosis, procedures, and long-term care
- Ongoing education, support, and transition planning as children grow into adulthood
We provide continuous support at every stage of care, ensuring a seamless experience from diagnosis through long-term management.
Common Reasons for Referral
Children may be referred to the Pediatric Hereditary Polyposis Program for:
- Multiple gastrointestinal polyps identified on endoscopy
- Familial adenomatous polyposis (FAP) or attenuated FAP
- Juvenile polyposis syndrome (JPS)
- Peutz-Jeghers syndrome (PJS)
- Other hereditary polyposis syndromes
- Family history of gastrointestinal polyps or early-onset gastrointestinal cancer
- Surveillance following a prior polyp or genetic diagnosis
Early evaluation and expert management are key to preventing complications and improving outcomes for children with polyposis syndromes.
All procedures are performed at Riley Children’s Health, including advanced endoscopic therapies through our Pediatric Advanced Endoscopy Program. Our close collaboration with the Cancer Predisposition Program and Medical & Molecular Genetics team ensures that families receive comprehensive care rooted in the latest research and clinical guidelines.
Conditions & Services
Conditions Treated
Our pediatric specialists provide patient- and family-centered care for most related conditions. The links below provide more specific information about some, but not all, of the conditions that we treat.
Services Offered
We offer a number of different Pediatric Hereditary Polyposis Program services. Below are some, but not all, of the services that we provide. If you have a question about a specific service that is not listed here, please contact our program.
Doctors and
Locations
Doctors
Locations
Locations
In addition to our primary hospital location at the Academic Health Center in Indianapolis, IN, we have convenient locations to better serve our communities throughout the state.
Related Programs
Related Programs
We provide multispecialty care for a number of conditions. Below are links to our related programs.
Related Departments
Related Departments
We provide multispecialty care for a number of conditions. Below are links to our related departments.