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Coronavirus (COVID-19) Updates: Visitor Restrictions & More

Safety Measures at Riley Children’s Health

We are taking thoughtful steps to ensure our spaces remain safe for patients, parents and caregivers. View safety measures, mask policy and visiting guidelines.

Information on COVID-19

Learn more about COVID-19, information about previously scheduled appointments and what you can do to help protect your child and family. View COVID-19 information.


Free Virtual Coronavirus Screenings

IU Health has launched a virtual clinic to offer individuals in Indiana regardless of age free coronavirus (COVID-19) screenings. View screening details.

Actualizaciones del Coronavirus (COVID-19)

Información sobre el COVID-19

Obtenga más información acerca del COVID-19, incluyendo las preguntas más frecuentes y lo que puede hacer para ayudar a protegerse y proteger a su familia. Ver información del COVID-19.


Restricciones para visitantes

Las instalaciones de salud de IU Health han implementado restricciones a los visitantes para ayudar a minimizar la propagación del COVID-19, la gripe y otros virus respiratorios. Ver restricciones para visitantes.


Información sobre citas ambulatorias previamente programadas

Para asegurar la salud y la seguridad de todos nuestros pacientes y empleados durante la pandemia del coronavirus (COVID-19), estamos haciendo ajustes en algunas de nuestras citas ambulatorias. Ver actualizaciones de citas ambulatorias.


Exámenes de coronavirus virtuales gratuitos

IU Health ha lanzado una clínica virtual para ofrecer a las personas en Indiana, independientemente de la edad, evaluaciones virtuales para la detección del coronavirus (COVID-19). Ver detalles de la evaluación.

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Riley Children's Health

Congenital Adrenal Hyperplasia Program

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Contact the Congenital Adrenal Hyperplasia Program

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Congenital adrenal hyperplasia is a rare condition that affects how the adrenal glands produce hormones. The condition affects boys and girls equally and can lead to a variety of symptoms that require expert medical care from multiple pediatric specialists.

Riley at IU Health provides comprehensive care for this condition through the Congenital Adrenal Hyperplasia (CAH) Program. Riley offers all the care your child needs in one location, allowing your child’s doctors to collaborate seamlessly. Our expert pediatric urologists and pediatric endocrinologists work together to identify and treat CAH using the latest medical and surgical techniques.

Surgeons at Riley at IU Health are leaders in the surgical care of girls with CAH. Our surgeons developed new techniques to repair genital anomalies that have now become the international standard of care. We also strive to stay on the forefront of research to ensure our patients have the best outcomes possible.

Riley at IU Health doctors have received national recognition for high-quality care of congenital adrenal hyperplasia. Riley has been designated a comprehensive care center (CCC) for patients with CAH by the CARES Foundation, the premier organization for CAH education, research and support. It is one of four designated centers in the country and the only one located in the Midwest.

Request an Appointment

Contact our Congenital Adrenal Hyperplasia Program Coordinator to schedule your or your child's appointment.

Call 317.412.1206
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Transitioning to adult care?

As part of Indiana University Health, Riley Children's Health makes it easy for patients to transition to adult care with the IU Health Endocrinology & Metabolism team.

Conditions & Services

Conditions Treated

Our pediatric specialists provide patient- and family-centered care for most related conditions. The links below provide more specific information about some, but not all, of the conditions that we treat.

  • Congenital Adrenal Hyperplasia

Doctors and Locations

Doctors

Pediatric specialists at Riley at IU Health provide comprehensive treatment options for congenital adrenal hyperplasia.

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    Locations

    Locations

    In addition to our primary hospital location at the Academic Health Center in Indianapolis, IN, we have convenient locations to better serve our communities throughout the state.

    Riley Outpatient Center at IU Health

    Pediatric Urology
    575 Riley Hospital Dr
    Indianapolis, IN 46201

    317.944.8896

    Get Directions

    View location information

    Riley Outpatient Center at IU Health

    Pediatric Diabetes & Endocrinology
    575 Riley Hospital Dr
    Indianapolis, IN 46202

    317.944.3889

    Get Directions

    View location information

    Program Forms & Resources

    Program Forms & Resources

    The Congenital Adrenal Hyperplasia Program at Riley at IU Health provides the following forms for parents, healthcare providers and personnel. We have also curated relevant resources from other websites and provided links with brief descriptions of the information that is available.

    Resources

    • Child to Adult Transition

      Riley at IU Health has created this resource to help ease our patients in transitioning from pediatric to adult care.

    • Cares Foundation

      The CARES Foundation provides support for families of children with congenital adrenal hyperplasia. The foundation also promotes advocacy, education and research efforts to improve care for the condition.

    • CARES Foundation Patient Satisfaction Survey

      This survey is for completion following all CAH Comprehensive Care Center appointments. Responses from the survey are used by the CARES Foundation for continuing evaluation of Riley at IU Health as a CARES Foundation-designated center for CAH.

    Related Departments

    Related Departments

    We provide multispecialty care for a number of conditions. Below are links to our related departments.

    • Pediatric Diabetes & Endocrinology
    • Pediatric Urology

    Health Professionals

    For Health Professionals

    For more information about our CAH Comprehensive Care Center at Riley, or to schedule a consultation, please contact the nurse program coordinator at 317.412.1206.

    Clinical Studies

    Safety, Tolerability, Pharmacokinetics, and Pharmacodynamics of NBI-74788 in Adult Subjects With Congenital Adrenal Hyperplasia

    NCT#: NCT03525886
    This is a Phase 2* study to determine dose levels and the safety of a new add-on drug (NBI-74788) for classic Congenital Adrenal Hyperplasia (CAH). This medicine is an extra medication for patients with CAH, so patients who participate in the study will continue their maintenance glucocorticoid and mineralocorticoid doses during the study. We are signing up male and female patients who are 18 to 50 years old and who have classic (21-hydroxylase deficiency) CAH. Each dose is given for 14 days in a row.

    *Phase 2 clinical studies determine whether a new treatment is effective after a Phase 1 study determined it is safe.

    Primary Investigator: Erik Imel, MD
    Research Coordinator: Marian Hart, Missy Coffman, 317.948.8346

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