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Scleroderma is a group of rare diseases that involves the tightening and hardening of the skin and connective tissues of the body.
There are two main types of scleroderma:
The main symptoms of localized scleroderma include:
Along with the skin-related symptoms above, symptoms of systemic scleroderma also include:
Rarely, systemic scleroderma can also affect proper function of the lungs, heart or kidneys, which can be life-threatening.
To diagnose scleroderma, your child's rheumatologist will conduct a comprehensive physical exam to check for the associated symptoms. The doctor may also recommend one or more of the following tests to help make a clear diagnosis:
If your child is diagnosed with scleroderma, it is important to closely follow the treatment plan of the pediatric rheumatologist.
If your child has localized scleroderma, it is possible that the skin problems that are part of the condition will naturally fade away within three to five years. If your child has systemic scleroderma, the condition will likely become worse, and it is important to follow the prescribed treatment plan.
Pediatric rheumatologists at Riley at IU Health may prescribe one or more of the following medicines to treat localized scleroderma or systemic scleroderma:
If your child has systemic scleroderma, his or her doctor may prescribe acid-reducing medicines such as Prilosec to help with acid reflux symptoms. In the case of children who have suffered severe lung damage due to systemic scleroderma, a lung transplant may be necessary.
Visit the trusted websites below to learn more about childhood sclerodermas & morpheas.
Riley at IU Health offers a broad range of supportive services to make life better for families who choose us for their children's care.
The Scleroderma Foundation provides detailed information about juvenile scleroderma as well as patient resources and support.
The American College of Rheumatology provides education and support for children and families living with localized juvenile scleroderma
In addition to our primary hospital location at the Academic Health Center in Indianapolis, IN, we have convenient locations to better serve our communities throughout the state.
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