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Cleft Care Across the Lifespan: Fundamentals for Parents

The Cleft and Craniofacial Clinic at Riley at IU Health presented a conference for parents of children with cleft lip and palate on March 6, 2013. “Cleft Care across the Lifespan: Fundamentals for Parents” explored the diagnosis, evaluation and treatment of infants through adolescents with cleft lip and palate.

Team members addressed topics such as feeding, speech, hearing, dental, and surgical interventions.

A nurse practitioner discussed how to prepare your child for surgery, and a child psychologist addressed issues pertaining to transitioning from adolescence to adulthood.

In addition, the conference featured two parents who shared tips and reflections on caring for a child with a cleft, and a teenager spoke about her journey growing up with a cleft lip and palate. Parents and patients had an opportunity to further connect and network with one another during the breaks and lunch.

Over 100 people attended the conference. In addition to parents, we also welcomed graduate students from Ball State University and nursing students from Ivy Tech. The program was sponsored by the Heads Up Foundation with support from the Friends of Carl golf tournament.

The Cleft and Craniofacial Team sponsors educational opportunities such as the “Cleft Care across the Lifespan” conference in our on-going commitment to craniofacial patients and families.

Trish Severns, MA

Author of this Article

Trish is the Cleft and Craniofacial Program Coordinator for Riley at IU Health. She is active in the American Cleft Palate-Craniofacial Association where she serves on the Cleft Palate Foundation Leadership Award Committee.

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