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A Parent's Perspective

This blog was submitted by the parent of a child with a Craniofacial disorder - Jeannie Ewing.

Our infant daughter, Sarah, was born with Apert Syndrome, which we discovered was a rare chromosomal anomaly and form of craniosynostosis. Shortly following her birth, we were referred to Dr. Flores, who became her craniofacial surgeon. At the time of this writing, Sarah has nearly a dozen specialists in the medical field, and she is not quite nine months old. All of her physicians are quite competent, and we have been more than satisfied with their expertise in their respective specialties. However, in our experience, Dr. Flores has been not only an exceptional surgeon but also an extraordinary person.

My husband, Ben, and I have been so humbled and impressed by the level of care provided by Dr. Flores. Not only has he personally called me to address post-operative concerns following Sarah’s cranial vault reconstruction surgery, but he has also taken the time out of his incredibly full schedule to pay Sarah a personal visit the day after her first surgery; it was during that visit that he spent nearly 20-30 minutes answering questions my husband had about the hardware in Sarah’s head.

What makes Dr. Flores so exceptional not only as a doctor but also socially is that he never acts as if he is in a rush when he meets with us for any pre- or post-operative appointments during clinic hours. It is clear that what he does is not just for a living but is truly at the core of his heart, and for that reality Ben and I are most appreciative. More often than not, physicians are in a hurry (understandably) and so they may spent 1-2 minutes with a patient, yet Dr. Flores makes the minutes matter without making us feel as if we are an imposition.

Although Sarah has facial differences and doesn’t exhibit society’s definition of external beauty, Dr. Flores always makes eye contact with her and says things like, “Good morning, beautiful!” To me, this showcases Dr. Flores’ quality of character that surpasses medical care alone.

Trish Severns, MA

Author of this Article

Trish is the Cleft and Craniofacial Program Coordinator for Riley at IU Health. She is active in the American Cleft Palate-Craniofacial Association where she serves on the Cleft Palate Foundation Leadership Award Committee.

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